It's hard to feel your body fall apart; it's harder to feel that at a young age. I am a 28-year-old woman diagnosed with Fibromyalgia. This blog is a look into what God is teaching me through this.
Friday, May 30, 2014
Settling in
October 27, 2012, I married the most remarkable man I ever met. If you're single, and disabled, you probably believe, like I did, you will never meet someone even willing to tackle the challenges that come with being in a relationship with someone in chronic pain. I knew Fibro is incurable and that I would struggle with it my whole life. I even believed that to date someone would be selfish. I felt that it would essentially be asking someone else to take care of me and bear the burden of this illness. How I could do that to someone I love, I couldn't imagine.
Until I met Will. Oh, he was everything to me! We'd been friends for years, online, but when we started dating, he constantly surprised me. From the ways he showed he cared to the times he actually had to care for me, he never abandoned me. Even during the time we "broke up" (a mere few months, but long enough for both of us to grasp what God wanted of us in our relationship), he was always there for me. The day I married him was the happiest of my life. Years of a long-distance relationship takes its toll, and finally I could say I would never have to go home and leave him again. He is my home now.
Though we've been married for a year and a half, I still feel like I'm getting used to it. Some mornings I wake up and forget my new life, imagining I'll wake up back in my old house alone. Adjusting to being a wife has been interesting, to say the least. I cannot work a normal job, not even part time, so I care for the house the best I can. Some days are worse than others, and hubby can attest to the fact that our house is no prize winner. We have weeds, dirty dishes, and unswept floors, probably like most families. The last two really grate on him, though so I try to make sure to at least do those.
Much has changed in my life. I care for a house, babysit my nephew (he's almost walking so he'll be real trouble soon!), and I'm trying my best to manage an Ebay business. Cleaning and cooking are troublesome so I'm always looking for ways to make them easier. An ebay business I can run from bed (at least I can with as small as it is now). Babysitting is tiring, but a blessing and not an every day occurrence. It's the cooking and cleaning that really get to me. I often have the desire to clean, but not the energy. So I'm always looking for ways to make it easier on me.
I have bookmark after bookmark saved, and I plan to tackle each one. Recipes I've saved, I plan to try out and see how they work. Tips for easier cleaning will hopefully have my house looking better. As I try them, I plan to use this to document. My original purpose behind Fibrohacker was to document ways to make living with this hellish illness easier. I've often said that the world won't adjust to make things easier on me, so I have to do it. I'm not afraid to use handicapped parking, scooters, or bring my own chairs. Not afraid to build a computer set up I can use at my recliner (sadly, while brilliant, has fallen into disuse due to a bulged disc in my back. Even sitting in my recliner for too long is painful these days).
So, as I go through my recipes and tips, I'll keep a log here. Some friends and I are working on a Fibro Cookbook too. I've no doubt some of my experiences will end up in there as well. I want to try out freezer cooking, preparing multiple meals in advance for simple cooking later, slow-cooker recipes, marinade recipes.......the list goes on and on. Time will tell if I follow through as well as I would like. I tend to have great ideas and take forever to implement them. But, settling into my new life hasn't killed me yet. Blogging about it should be relatively easy!
Sunday, July 25, 2010
I Hope This Is Worth Watching!
On the other hand, my disappointment with most sequels gives me mixed feelings. I am generally pessimistic about sequels, but the creators/producers are staying the same, so that's a good sign. I really hope this series doesn't leave me dissappointed.
The new series, Avatar: The Legend of Korra (title may change) outlines the story of the next Avatar in the cycle, a girl named Korra from the southern Water Tribe. Unlike Aang's adventure where we watched him master Water, Earth, and Fire, Korra's story begins with her attempt to master Airbending in a world with few airbenders. Her journey takes her to Republic City, a city with rampant crime and "a growing anti-bending revolution".
It sounds very interesting and I'll certainly be keeping up with the series when it comes out.
Full article here.
Tuesday, December 16, 2008
Christmas Shopping is DONE!!!
So, yesterday, I finished that, went to the Chiropractor. He says I'm doing very well. My back and neck are holding their position well. They don't really pop much when he adjusts me, which seems like a good sign. He says I'm really flexible. He has to twist me around all sorts of ways to get the tension he needs to adjust me. lol. I feel like an owl with my chest facing one way, and my legs another. I'm remarkably flexible for a chubby girl. But that went well, and I've been doing well on making the payments and such. I went home afterwards ready to relax. Sit back in my recliner, watch a little TV, and slay some orcs. Actually, what I had in mind was to maybe do some crafting or something. I have plenty of Everquest characters to level up there and it's relaxing enough and mindless enough that I didn't have to deal with too much. I looked forward to chatting with my friends. But, the night did not turn out as I expected.
Recently, my guild co-leader, Rat, returned from his hiatus. He missed a lot in the couple months he was gone, but he's been slowly getting used to the changes and getting back into the swing of things. He picked up his old job, managing the guild bank. The banking system for the guild is basically we have 4 vaults. each one is set up for it's own unique purpose. Bank one is free-for-all. Anyone can take or deposit items there. Bank two was used to store Rare materials for armor or jewelery to be made. We had recently made plans for the items in there. Banks 3 and 4 were special Items that could be purchased with guild points, which we assign for a variety of things that benefit the guild.
I logged in yesterday to hear my co-leader say "Am I lagging? I must be lagging. There's nothing in the bank." I thought, he must be lagging. The only people who have access to the bank are officers, whom I trust, so he must be lagging. I checked and sure enough all the banks were drained of anything valuable. All the coin, all the items. Everything. We checked the logs and found that our newest officer, which, he's been an officer for about a month, had completely removed everything. We checked broker and were able to find that he was selling the items on some of his characters. I immediately called an emergency officer meeting to decide how to handle it. He was subsequently demoted until we could try to figure out what he was thinking, or at least have some strong words with him. The bank was locked down to all but leaders and senior officers (Whom have been around for quite some time and are certainly trustworthy). We researched his character and found the names of all his toons. A letter was sent to the guild to inform them that we had been robbed. We also decided to release the names of this character's alts in hopes that should they come accross him in the battlefield that they would dismember him with glee. What kills me most about it is that he didn't just betray my trust, but the trust of the guild. The guild donated eagerly to the bank, and he violated that. I think my most sr. officer was even more livid about the whole situation than I was. A petition was made in hopes that we might get some of our items back, but we have little hope for that. Sony rarely gets involved in these types of matters. My officers have been out farming zones for good items again and a couple of us raided our banks for rares.
We decided to crack down on a few things as a result of this. We've been lax about security of our guild hall, but shortly after discovering this, we were met with the sudden surge of people from another guild who felt that they were permitted to use our guild hall for free without actually being in the guild, simply because they used to be in the guild. It honestly really bothered me because they left, saying they wanted to raid, but yet they do not raid. I don't trust people who lie about why they leave. I get all sorts of reasons why people leave. I don't particularly care. If people want to leave, there's little I can do to stop them. But when they lie to me, that's when I have issues. So we locked down the guildhall. No visitors allowed for the time being. We're hoping they'll get the hint.
I'm trying not to let this turn of events cause me to be cynical or question those I've trusted before. It's difficult not to however. There's so much clean up work from this. So much for my relaxing night. I would really like to actually play the game for a bit before being assaulted with this kind of drama. *sigh* Maybe I'll be lucky and find that my guildies majorly pitched in to make up for this when I log on tonight.
Monday, December 1, 2008
Pictures
Sunday, November 30, 2008
Sore all over
In other news, Thanksgiving was pretty fun. Justin actually showed up, which was good. I was afraid he'd decide not to spend it with the family because he and Mom are at odds. We ended up celebrating Josiah's birthday on Friday night. I have a few good pictures I will try to upload later. He blew out his own candle. it was so cute.
Despite having fun with the family this weekend, I'm finding myself struggling with the holidays. This is the worst time of the year to be alone. In some ways I blame myself. I don't get out much. Granted, the Fibro is the main cause of it, but I can't help but blame myself for not getting out more. If I got out and did more, maybe i wouldn't be so alone. I become more convinced the person I meet will be online, but there are so many unsavory characters online........I talked with a guy the other night and he's so obviously not good for me. He doesn't get it. It's so hard to explain my standards, my beliefs without seeming like an elitist. As much as I tried explaining it to him, he doesn't understand. I won't get involved in a relationship that cannot work. If our beliefs are so vastly different, how can it ever work? It wouldn't be so bad if he just accepted that and moved on, but he keeps talking as if he can win me over.
I talked with a friend of mine last night about this. How I'd been down that road before. How I'd been tempted to lose my virginity to that boy. He asked me if I was still a virgin and I told him I was. He told me that was admirable, which kinda shocked me. But it made me realize something else. I want a man who thinks that's admirable, not who's going to try to convince me to waver there. This guy keeps talking about how he could show me a good time and his girlfriends in the past only seemed to like him for how he was in bed. I'm not interested in that.
I have a feeling this will end in conflict. If only I fould find someone who would be exactly what I need him to be. Maybe I'm asking too much.
Tuesday, November 25, 2008
A brief update
Things have been pretty busy at work. I managed to get into work most of last week, despite feeling like I'd been hit by a truck. This weather is really messing with me. Between sinus problems and FMS, I've been miserable. But I finally got over my sinus infection, so it's just a matter of maintaining now. That reminds me. I need to call my Dr and see if my insurance approved my Allegra prescription. They hate approving meds for me. **sigh** If I weren't on a group plan, I'd be afraid they'd drop me. lol.
The chiropractor is going well so far. I pay them $150/month and I get as many adjustments as I need. Right now, I'm going 3x a week. It's really kinda nice. I get everything put in place and it really feels good. This week I think I need it more than ever........the FMS is really acting up. It had started to subside for a bit, but it's back in full force this week. I don't know if it's the weather or what, but I am just achey and in pain all over. I'm starting to wonder if I've got RLS too, because I have the most miserable time with my legs when I'm reclining or in bed......This is the first I've noticed it, so I'm going to keep an eye on it, and bring it up the next time I see my dr if it continues.
geez......I really am a mess. Several paragraphs of health problems and I could still go on.....but I won't. hehe. Josiah's birthday was Sunday, but we're planning on celebrating it on Thursday when the whole family can be there. I can't believe he's 3!!! He's talking so much now. He knows his pokemon. lol. I swear, it seems my little brothers learn made up words before real ones, but he really does talk in sentences now. "I put castle up here!" he said the other night. lol. It was soooo cute. He even asks questions: "you go through gate?" At least, I think that's what he said. lol. I need to see if I've got video of him. I'll have to post it. He's just so darling. lol. He knows his signs. He signs "More drink" and "bath" and he's getting close to doing "I love you". But he actually did SAY "I love you" the other day. Grandma brought him to the condo on my day off work a couple weeks ago. "I go up stairs" he says, and he did. "I go down stairs" and one by one he made it down stairs. He came to me distraught when Grandma was in the bathroom and he goes "Where grama??" He was so scared. lol. He thought he lost her.
Mom's going to go simple this year for thanksgiving. Order some of the stuff from Vons or wherever and just make a few of the favorites. Probably wise. Maybe I'll make and bring the mashed potatoes. I always liked the home made ones better than store bought. We still don't know if Justin will be there. He's kinda been at odds with the family since "The Confrontation" we had with him a while ago. He and Brittany broke up and I think he's bitter about that. I know he has to have his time where he's rebelling, but it sucks around the holidays because I don't know if he'll be there or not. My guess is he won't. And that will kinda put a damper on things.
Great! A new development.....apparently, I can't put my weight on my left foot. This will make for a wonderful day........I just can't catch a break. I feel like if it isn't one thing it's another. Well, I've got to get back to work. Hopefully, I can make it through the day.
Monday, November 10, 2008
Can't afford it.........
So, the last time I went to the doctor, I talked to him about seeing a chiro. He told me he thought it might help and was all for it. He gave me the name of his chiro and I scheduled an appointment for today. What I neglected to find out was that apparently, because I'm on an HMO, they don't cover chiro, at least not on my plan. The ladies were going to double check for me, and I thought, "well, how much could it be?" they said it would eb a cash plan at a reduced rate. After an hour of tests and standing and moving and more testing, xrays, and computer scans, they said I would go back tomorrow for the results and my chiro plan. Ok, fine. I can live with that. I'll get my adjustment tomorrow, and everythin will be hunky dory.
I get to the counter to pay.........$220!!!!! I broke down. I don't have $220 in my account right now, how the heck am I suposed to pay that??? One of the ladies took me back to her office. we talked about it. She's going to check with my ins and see if they will cover any of it. We might have to get my dr to write a referal for it. I know he would. He'll do most anything if it means less pain for me. but, even then, I don't know if this is going to be manageable for me. I have spent soooooo much money on my health. $200 colonoscopy, meds, dr's visits. I just can't afford this.
I thought health insurance was supposed to make it possible for you to actually be healthy. I hate to be so negative......Things have been getting better, slowly, but everytime I have a set back like this, I feel more like living with FMS is a death sentence. If it doesn't kill me, the going broke will. my only saving grace is that I live with my Grandma and she will forgive me if I miss rent for a couple months.
I'm sorry. It's just one of those days, but I just can't comprehend why it's so (insert adjective of choice here) expensive just to be well. It's hardest on those of us who need it most.......
Wednesday, November 5, 2008
Monday, November 3, 2008
This is God - Phil Vassar
http://www.youtube.com/watch?v=83PEiGbXnYI
Friday, October 17, 2008
Forum Posting Rules to Follow
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When posting in online forums, adhere to the following guidelines to ensure you get the most out of your online experience.
Rule 1: Argue! This is absolutely the most important rule of posting in any online forum and many of the other rules are based upon it. Be sure to start an argument whenever the opportunity presents itself. In fact, even if the opportunity doesn't present itself, argue anyway. After all, people don't come to message boards to share ideas, have polite discussions, or learn new things; they're there stricly for the non-stop arguments so be sure not to disappoint. Also, be sure not to back up your arguments with any facts.
Rule 2: Flame other posters. This rule goes hand in hand with rule 1. You're already starting an argument, so why not insult someone while you're at it? Don't just disagree with the previous poster's post; make it personal! If member John293 creates a topic about why he feels the war in Iraq was uneccesary, you should respond with "No John, the war was right and you're stupid for thinking otherwise." Better yet, throw in an insult that has nothing to do with the topic of discussion and make sure it's an insult about their appearance or something in their personal life you couldn't possibly know anything about. Take the previous example about user John293's anti-war post. An even better response would be "No john, the war was right and you're ugly."
Rule 3: Never, under any circumstances,use proper spelling and grammar. Doing so will only confirm that you are a nerd. Instead you should shorten three letter words such as you and are and express them as single letters like U and R. Be sure to substitute as many letters in a word as you can with numbers. Spell these words wrong as well. For example, instead of typing "I Like to eat," you should type "i L31k 2 34t." Also remember to never ever begin a sentence with a capital letter. This will only make your sentences easier to understand and in turn easier for whomever you're currently arguing with to pick apart and respond to your posts.
Rule 4: Lie. Fabricate stories about girlfriends or boyfriends you don't have, experiences you've never had, and sports you don't play. After all, who's going to check? This can be especially useful in arguments. Should someone attempt to call you on an argument which has no factual basis (none of your arguments should anyway), simply lie and tell them you graduated from an Ivy League college at the top of your class which landed you a 6-figure job and are therefore not only much smarter but also a more successful person in general than whoever it is you're currently locked in battle with.
Rule 5: When arguing, be sure to point out every minor spelling and/or grammatical mistake in your opponent's previous post. This will distract the other users reading your argumentative and insulting posts (yes, you have an audience and everyone is interested in your petty fight) from the fact that your posts have no actual substance or point to them. Should your opponent's post contain no errors, call him or her a nerd for taking the time to write out such a perfect posts. If your opponent points out the errors in your own post (and there should be plenty of them), tell him or her that you weren't really paying attention when you wrote it and imply that he or she has no life for scrutinizing over it.
Rule 6: On most forums there is a search feature. This feature is just there for show; make sure never to use it. Instead, what you should do is make a new thread about your topic. If it's already been posted numerous times before, great! Now there's one more and every good poster knows you can never have enough duplicate threads. If for some reason no one responds to your thread, don't search for answers or information elsewhere. Simply make another thread containing the exact same post you posted in your first thread. This time around you're sure to get a response from someone and as an added bonus they may complain about the duplicate threads...another chance to argue!
Rule 7: Never back down or give up on an argument. No matter how clear it is that you're in the wrong and have lost, keep arguing and flaming. When everyone realizes your argument has nothing to support it, simply tell them that they just don't get it. If the other members politely ask that you remain on topic and cease the arguing, insult them and drag them into your argument. Don't ever stop until the board's administrator closes the thread and issues you a warning and/or ban.
Rule 8: When your username is banned from the forum (and if you've followed the previous rules correctly it will be) register under an alternate username and continue to troll about the forums. Mock the admin who banned your other username while you're at it. When you're banned again, simply repeat the process all over again.
If you follow this guide correctly you should earn yourself the coveted "IP ban," the ultimate goal of all good members of a message board, in no time!
Monday, September 29, 2008
Worth a few laughs
Blah Day
Ugh....I hate Mondays. My friend, Altz, last night told me "Just remember! While you're at work tomorrow............I'll be playing Everquest." Butthead.... What I'd give just to be home right now, drowning my pain and sorrows in orc and goblin blood. Lol.
I stayed up too late talking with him last night. I've been in a mostly good mood all weekend, but now, I dunno. Last night I was a wreck. Depressed and crying, and poor Altz having to listen to me. He's a good friend, but he can be a real butthead sometimes. He just made a choice recently about his character in EQ2 I don't like. It means he won't be able to play with me as much, and even though it feels selfish to want him to stay and play with me, he wasn't happy. But with him gone, now I'm not happy....sigh. I'm losing my friends there one by one. And I'm afraid......afraid he's going to be next.
My love of the game makes little sense to most other people. I've had my emotional highs and lows with that game. At least there, I feel alive. I'm not limited. I can run, I can keep up with my friends. I can still do things with them and I don't have to leave early because I'm in pain, more often than not. FM does not limit me as much there like it does in real life. I have good friends there who care about me. I have enemies who hate my guts. And I still feel.
But I'm regretting now that I stayed up as long as I did. And that I spent all night crying. He told me we'd talk on msn today, but we haven't......and that scares the crap out of me. The day is just beginning though, so I'm hoping when he does get back online, he will actually talk to me.
Thursday, September 25, 2008
Bored out of my mind

Isn't that the reason most blogs are started? Someone at some point got bored and said "Hey! I think I'll put my every thought up on the internet for the world to see!" Well, I had that same thought today....and hopefully I don't get myself in trouble. I have so many ideas, so many things to blog about, that I may find myself unable to do anything but blog.......ok...I'm exaggerating, but I do foresee several blogs a day. I have so much to blog about.
First things first, as a Christian and a thinker, I'm bound to have great epiphanies, stories about my own walk with God, and words of encouragement. There is a story I wrote a while back that I will have to dig up and post on here that I found most encouraging to me with what I was dealing with at that time.
I am a part-time Web Designer and Computer Technician. I love working with computers, software, hardware.........If it has a circuit, give it to me. I am the Queen Geek. Gadgets are my drug of choice. You should see the high I get when I get a new toy. I can find anything online.....a lint trap for the dryer, carriage belt for a plotter (actual examples found and ordered in 15 minutes flat!)......I have become known in my family as the Google Queen (not to be confused with the borg queen, although, now that I think about it, I can't say we're that different, really).
I was also recently diagnosed with Fibromyalgia. FMS is basically a condition where you have chronic pain in your muscles and joints. I've read that it may be a neurological condition where the brain reacts to stimuli differently than someone who doesn't have FMS. It is still very much a mystery and is being researched more thoroughly. There is still much to be learned about it. I've considered becoming involved in a study of Fibromyalgia, but I haven't decided yet....
And last but not least, I'm an Everquest 2 addict. Well, perhaps addict is too strong a word, but I'm pretty close. I love playing the game and the people I play with. I've made great friends there, a few enemies, and plenty of memories. I lead a guild on the Nagafen server called From The Ashes. Its a Freeport Guild (Evil-aligned) and we've grown so much in the last few months. I love leading a guild there and couldn't imagine playing without that. It's very much like running a business....Lots of work, lots of frustrations at times, but oh so rewarding!! I love seeing where it goes. I'm hoping to get my Dad to join me. hee hee hee.





